Back to Fibromyalgia

[MeerKat]

I have heard so much about Fibromyalga from you ladies, I don't know exactly what it is. Is the pain all over your body are is it just in certain areas?

[DinahRoberts]

Hi MeerKat, I hope you are your hubby are doing well. Let me see if I can give you some kind of an explaination. Fibromyalgia is defined as pain from unknown origins. And yes, it is all over your body. One of the ways I try to explain it is feeling like you have the flu year-round and being severely bruised on top of that. You hurt all the way in your bones. Also it is cronic fatigue, I sleep a LOT and it seems I never get enough. That gives an inkling of what it is but doesn't explain how severe it really is...it's pretty much undescribeable but that is the best I can do. Hugs, Dinah

[Susan2014]

Hi Dinah !! I am so in touch with your pain. Kinda scary as I have OA BUT the pain is now in other areas and can hardley raise arms ans neck I need a wet Hot Pack around it, my feet, arms/shoulders, Hands......how am I going to crochet???? as my eyes want to close, nodding neddles Kevin /son calls me. Its funny as he took a Pic. Laugh when you can, peeeee if you can get up??
Fibro. God Bless & take me by My Hand Thursday- 8am at Sport Specialist. Primary cant give me Pill or shots till I know just why & what is it that is a Pain N my Body except nose hehehe. Venting sorry sweetie. Luv and allways on my mind. SMJ

[DinahRoberts]

Hi Susan!

I'm so sorry you are in pain like that. I have OA as well as the fibro and a unrepaired back injury. I won't let them cut on my back so I just endure. I so hope they can find out what is causing your pain. I will be praying for you and wishing healing energy to come your way.

When I start falling asleep sitting up I call it "the jello neck head bob" LOL!!! If I even bother to sit in my recliner without reclining it I fall asleep, it's just a comfortable place for me.

Take care of yourself!

Hugs, Dinah

[Susan2014]

Dinah Thanks . Until 2 years ago I would panic & go into a Anxiety attach & get daethly sick. Now Im on meds just enough to calm me etc. other thing is reading about all my Friends in Pain from Fibro etc, it has given me something I cnt put in words, Im dealing with it but still nervous for Thursday they could say I have Fibro. or something else?????? If so I will go on as CT Friends give me the strength & Guts to deal with pain & Thrifty Hubby who has $$$$$ on his mind not if you need to Pay out of Pocket so be it NOT its how much do you think?????????I just look at him NOT saying a word. Can you tell Im more worried about $$$ then myself??? I just realized it reading over & wondering if I shoul erase this?? LUV & HUGS

[kitty jean]

Hi Susan, Deep breathes girl! Hang in there with us. One of the best things about chatting with us is that we do understand the "hidden pain" syndrome. Where every one says " but you look so good/well/healthy. How can you be ill?" So, yes vent, talk of worries, talk of struggling with trying just to hold a cup/glass to have a drink, of trying to hold a fork/spoon steady enough to eat on the really bad days, of being so dammed tired of being sick and tired, talk of monies being so short that you worry about where the next loaf of cheep bread will come from never mind about the rent, talk about being shunned from family get togethers because they don't know what to say or how to help, of not wanting to even see that dag blasted bed/chair again yet knowing it may be the only place you can get any relief, of spouses/ kids still wanting you to do things for them when all you want to do is curl up in a ball and cry, wanting to cry yet knowing if you do it will hurt all the more, talk about the frustration of dealing with Doctors and appointments and taking med after med that never seem to help, of the frustrations, pain anger, worries, the wanting to hug/hold you spouse/child but also knowing it is going to hurt like hell. of wanting to be able to get up and do things on the really bad days, on getting up and doing things on the good days and knowing you are going to pay dearly for it the next, of wanting to enjoy a sunset/sunrise without the pain for just a few minutes, of the simple joy of crafting just for the fun of it, YES TALK ABOUT IT! Because it is one of the very few relief valves we have that can help keep us from going over the edge. May you have an Angel by you side at all times. Later Gaters! Kit

[seashells_Shelly]

Hi Kit. No truer word were spoken, not just about FIBRO but other ailments that are devastatingly painful inside and no one can understand why you just can't be tough and suck it up. I've had 2 cervical spine surgeries which have been a Godsend. I am now 60 years old but was diagnosed with FIBRO when I was 18 years old. I have tendonitits in hands, wrists, elbows, shoulders, even my feet and ankles. Who can see the pain? No one so they don't want to believe you, just think you are being lazy...where's my dinner, I work all day I should at least have a decent meal when I get home...blah, blah, blah. You are so right that here we have so many who understand the pain and frustration we go through. So we all need to vent and rant and talk about what is going on with us, it's healthier for us to get the words out. Being able to tell others who understand what you are going through is a good stress reliever which in turn can ease the tightness in our muscles and joints, etc. which will hopefully give us just that little edge of relief so we can breathe easier so that maybe we can smile and not have it hurt. Thanks so much Kit for saying it the way it really is. You're thoughts and words give us the "okay" to get out the thoughts that we wish we could just scream at those who make us feel as though we are looking for pity (far from it---I haven't found one person on here looking for pity). PRAYERS and HUGS to all, Shelly. When you lay your head down may there be an Angel on that pillow to watch over you.

[Susan2014]

Kit I dont know what to say....You care you and others really CARE. Thanks and I will answer this if I may tomorrow as Im needing a Bath on my seat hehehe I cant gt down so I have a chair. I do and allways a smile even when I hurt. Sad But True I feel so much better knowing Im not alone. I need the message you sent me here to print off...No copier. I will get it I need to have it up to remind me. Thank God For Friends on CT. Kit an Angel of Mercy you are. HUGS & Prayers. My Angel I will make and call her Kit.

[kitty jean]

Hi Susan, You can talk to any of us. I just happened to have some of the words today. Some times I get so frustrated that I can't even think let alone talk or write. I even had to set aside a couple of my crochet projects and just settle into making some new dish clothes because I could not concentrate properly on what I was doing. The pain holds us in a grip so tight that it takes over our whole life and some times nobody will believe us because there are no external makers they can see or test for. So Honey all I can say is may God bless and keep you in his mercy at all times and may he send an Angel to be by your side in all things! Later Gater! Kit

[amanda]

I have been here and there on the site, mostly just reading! Sweet Kit you really do help us all feel better! Dinah, that is pretty much right on target with FIBRO, besides the stabbing feeling we have continuously on bad days, or the sludge hammer feeling during the spasms in our backs! My back is finally seems to be easing up a little, I can sit up in bed without crying or screaming, still hurting severe if I'm not careful! Momma SUE, we are always here for you and others who are hurting in whatever way, it is all painful no matter what physical or mental pain we are enduring! Venting is very good for your health! Everyone take a deep breath and SCREAM! Do you feel better? Hopefully a little! Take each day one step at a time! You are all in my thoughts and prayers! LOVE YOUR FRIEND MANDA!