Who else has Fibromyalgia and or Chronic Fatigue?

[justplainjudy]

Jane, I'm so afraid that my shingles will come back. That is some of the worst pain I have ever experienced. My doctor gave me the shot for it. I told the nurse I couldn't afford it, & I never saw a charge for it on my bill. But even though I've had the vaccine. he told me that I can get it again & again, just not as severe. Gee, thanks so much! Why does it seem that fibro sufferers get all these diseases, orthopedic problems, physical issues? They should do a study on that. They have no clue as to what fibro is REALLY about! Judy

[amanda]

When I was diagnosed 5 or 6 years ago my doctors I see just came back from a convention about fibro in Florida! That was when my doctors figure all my symptoms are just as that! The now say that it started 21 years ago after my first son was born when I was 21. You can get a lot of info off the internet, they used to send me info in the mail. When I searched it there was so many people that say there are more groups out there to talk to but I rather talk to people like you ladies cuz I feel more comfortable with! I hate when they ask what my pain level is because most of the time it's about a 15-20. I have a walker to get around the house on my bad days the real bad days I just stay in bed unless I have to get up. We went grocerie shopping last night, so I have been in bed exhausted and in pain today. LOVE YOUR FRIEND MANDA!

[justplainjudy]

I'm sorry you have it so bad, Amanda. I know: that pain level question gets me too. I always tell them 1-10 doesn't cut it. It's always worse than that. They have no clue whatsoever. I had a rough time last nite, And I don't think today is going to be good. Hope today is better for you. Judy

[amanda]

I hear you there Judy! Yesterday my nerves were so bad including my back, I was so stressed and crying again about my nothings, I see gyno Thursday, maybe he can reverse the shot LOL! It caused me to gain the 15 pounds I lost back quicker than I lost it I am so frustrated and so tired of hurting and everything else, my family keeps tellin me to calm down and relax, we rented a cartoon movie last night and that helped some just not the pain!

[janie mae]

Landon,
Thanks for starting this thread. It's nice to know you aren't alone. You know when I went for my last hearing for Social Security, they tried to tell me Fibromyalgia wasn't even recognised as a disease/ diagnosis. Like it doesn't exist. This pain is in my head. I wish. I see that I am not the only one. It is bad that sometimes a hug hurts. That the tender spots are so tender you can't be hugged without pain. I'd like for them to feel that & then say it isn't real. Florida is the worst place to get any help or understanding. You ladies have been more caring than most of the health care professionals I have.thank you all so much.
Hugs, Jane

[Landon]

I am very sorry that we all have all these health problems!! I am grateful that we have found each other and we can be supportive of one another. Jane, I am so sorry that SSD is being such an a** about your disability. I hope your benefits come through for you soon.

I am grateful that on this path we have each other and know we don't have to walk it by ourselves. That helps me so much!!

You are all in my prayers!! XOXOXOXOXO

[amanda]

Jane it took me 4 or close to 5 years to get it! They really irritate me cuz they will give it to alcoholics and drug attics no questions asked which I think is wrong. They told me I was so young 36 at the time that their should be something I could do especially with all my job experiences! It was like a kick in the back! Especially since at that time I was on meds that didn't work at all. It is really depressing and upsetting, I was finally approved 3 years ago after my spleen ruptured. Make sure you stand and sit and show them how much you hurt sitting for certain amounts of time. Tell them what you are going through physically mentally and emotionally. Love you honey and good luck my prayers and thought are with you! LOVE YOUR FRIEND MANDA!

[justplainjudy]

I wish I could give them an earful and tell them how it feels to sit & stand. How it feels to be hugged. How it hurts to have your husband touch you. How he feels when he touches you and hurts you. Let them hear from us how we feel. Witnesses of how badly you feel when you even move an arm or a finger. How a child running to hug you, and when his body slams into you, you want to scream with pain, but can't. Or how about when just typing at the computer is a challenge. Or you can't sit or stand for more than 5 minutes because your body freezes in that position? It's not in our head. It took me 3 years to get my disability. Idiot doctor! Keep fighting, Jane.
(Sorry, I have a big blob of a cat sitting between me & the keyboard) Judy

[janie mae]

They had the nerve to tell me I could go back & do my same job! The job that I slept all weekend, then started using PTO until I didn't have a check. The job that even with FMLA, was looking for ways to terminate me because my attandance had gotton so bad due to my pain & illness. Yeas, really, their vocational specialist said this. Stupid B*%$#! My dr wrote them a paper that I'd have to lay down for at least 30 minutes every 2 hrs. I think that tipped it. They didn't want me that way, resting almost as much as working. But I'm up for review every 24mths like I will magically get better. I don't see how. The older I've gotten, the worse my pain has become.
Hugs, Jane

[Nancy Jean]

I am new, so I don't know the protocol, so I could be doing something wrong. I seen your statement on fibromyalgia. I have it, that's what makes you fatigue. I take Savella, it help so much. Before I started on it I could not lift my arms without severe pain. Now it's like I don't have it. Savella really works.